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FasterCures Is Relaunching the TRAIN Newsletter: TRAIN eNews!
Dear TRAIN Friends and Colleagues,
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FasterCures Selects Foundation CEOs for New LeadersLink Leadership Development Program
Advancing a promising scientific discovery to a viable treatment option requires long-term coordinat
ed efforts from leaders across the biomedical ecosystem.
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Consortia-pedia Framework Report
FasterCures initiated the Consortia-pedia project to better understand the breadth and scope of app
roaches that a wide range of consortia have adopted to bring together nontraditional partners with a shared R&D goa
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Unlocking Intellectual Property: Principles for Responsible Negotiation
FasterCures convened a small Intellectual Property (IP) expert panel in July 2012 to develop a
set of guiding principles and points to consider that can serve as a useful tool for all parties
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Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakehold
ers such as product developers and regulators to define and implement the “how to” of patient
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University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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Cornerstones of Collaboration: Foundation-Led Partnerships to Accelerate R&D
Multi-stakeholder collaboration isn’t just the participation trophy of biomedical research and deve
lopment (R&D), a nice way to make sure everyone feels included.
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Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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The Scope and Importance of Translational Science
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advancing Tr
anslational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the expertis
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The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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