68
report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Venture Philanthropy Legal Report: The Importance of An Interruption License
This report is one in a series on legal issues of interest to non-profit organizations engaged in o
r thinking about Venture Philanthropy work. It discusses the beginnings of Venture Philanthropy in drug development, the importance of an Interruptio
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report
Innovative Finance Models for Global Early Warning Systems for Pandemics
Despite lessons learned from COVID-19 and other outbreaks, the world remains ill-prepared for the n
ext pandemic.
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report
Financial Innovations Lab: Market Solutions for Scaling Food Is Medicine Prescriptions
Diet-related chronic disease continues to rise throughout the US population and, with it, the cost
of health care.
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report
Financing Global Early Warning Systems Country Case Study: Kenya
Kenya experienced a significant economic slowdown during the COVID-19 pandemic. Kenya’s extensive a
viation connections throughout Africa, Europe, and Asia make Kenya one of the fastest-growing economies in Africa.
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video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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article
The American Dream Monthly: August 2024
In This Issue
What We’re Reading
What We’re Listening To
This Month at MCAAD
Dear Friends,