90
report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Venture Philanthropy Legal Report: The Importance of An Interruption License
This report is one in a series on legal issues of interest to non-profit organizations engaged in o
r thinking about Venture Philanthropy work. It discusses the beginnings of Venture Philanthropy in drug development, the importance of an Interruptio
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video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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video
The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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video
Interview with ‘E’ Aboyeji: Investing in African Innovation and Entrepreneurship during COVID-19
Iyinoluwa Aboyeji, Founder & General Partner of Future Africa, speaks to COVID-19 Africa Watch
about how the pandemic has changed the startup investment environment and what the opportunities might be for retail investors.
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video
Interview with AU Special Envoy Strive Masiyiwa on the Launch of the Africa Medical Supplies Platform
COVID-19 Africa Watch discusses the launch of the Africa Medical Supplies Platform with Strive Mas
iyiwa, founder and chairman of Econet Wireless, and African Union Special Envoy for mobilizing the private sector response to the COVID-19 pandemic.
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video
Interview with Aya Chebbi, African Union Youth Special Envoy
COVID-19 Africa Watch speaks to Aya Chebbi, African Union Special Envoy on Youth about the impacts
of COVID-19 on youth across the continent.
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video
Interview with Dr. Samira Asma: Using Data for Pandemic Preparedness and Response
COVID-19 Africa Watch talks to Dr. Samira Asma, WHO Assistant Director-General for Data, Analytics
and Delivery for Impact about the importance of data in preparing for and responding to health crises.
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