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report
IBD Plexus: Partnering to Accelerate Science
IBD Plexus is a research and information exchange platform whose goal is to accelerate research and
transform the care of patients with inflammatory bowel disease (IBD).
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report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Venture Philanthropy Legal Report: The Importance of An Interruption License
This report is one in a series on legal issues of interest to non-profit organizations engaged in o
r thinking about Venture Philanthropy work. It discusses the beginnings of Venture Philanthropy in drug development, the importance of an Interruptio
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report
State Technology and Science Index 2020
The State Technology and Science Index (STSI) provides a benchmark for evaluating the knowledge eco
nomies of all 50 US states.
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report
State Technology and Science Index 2016: Sustaining Americas Innovation Economy
As the Great Recession recedes in our rearview mirrors, it is becoming ever more apparent that inno
vative activities are determining an increasing proportion of the long-term economic growth of cities, metropolitan areas, regions, states, and even natio
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report
State Technology and Science Index 2012
Massachusetts is first -- again -- in the Milken Institute's State Technology and Science Index 201
2.
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report
State Technology and Science Index 2016: California Perspectives
The Milken Institute’s State Technology and Science Index (STSI) series benchmarks states
on their science and technology capacity.
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report
State Technology and Science Index 2022
The State Technology and Science Index (STSI) provides a benchmark for evaluating the knowledge eco
nomies of all 50 US states.
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video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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