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report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Venture Philanthropy Legal Report: The Importance of An Interruption License
This report is one in a series on legal issues of interest to non-profit organizations engaged in o
r thinking about Venture Philanthropy work. It discusses the beginnings of Venture Philanthropy in drug development, the importance of an Interruptio
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report
Monetary Policy and Financial System Resilience
This report, from Franco Bruni and Claude Lopez, proposes four steps to address the challenges
of international policy coordination.
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report
The Macroprudential Policy Framework Needs to Be Global
In this policy brief, authors Claude Lopez and Franco Bruni clarify the goals of macroprudenti
al policy and highlight the challenges home and host countries may run into w
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report
Digital Money Is Here: G20 (Thinking) Must Go Digital
This report, from authors Jose Siaba Serrate, Claude Lopez, Halit Unver, Sergey Drobyshevsky, and P
avel Trunin, analyzes general principles, rules, and basic recommendations by cons
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report
BigTech Companies: An Inclusive and Global Regulatory Framework is Needed
Efforts to monitor and regulate BigTech companies have been fragmented, both globally and across ec
onomic sectors.
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report
The Crypto-Assets Experience
This paper was originally published as part of T20 ARGENTINA.
video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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