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article
A Prescription for Brain Disease Research
The population is aging, and so are its brains. Neurodegenerative diseases are impacting more people
—those who are diagnosed and their loved ones—bringing with them higher costs for all.
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article
Why Taking Chances in Developing Rare Disease Medicines Is Worth the Risk
Of the 7,000 known rare diseases in the world, only 5 percent have treatments. This means that a lar
ge majority of those who live with rare diseases are left without meaningful options—and some, without hope.
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article
The Future of Health Is Humanwide
Today, most people’s interactions with the health-care system are reactive, driven by crisis and dis
ease.
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article
What is Prosperity Without Quality of Life?
Prosperity is an interesting word, and for many, I would expect, the concept of wealth changes over
time. In my younger years, I would have suggested prosperity meant sufficient wealth to provide for my family.
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article
From Care of Disease to Care of the Person
Health-care systems and innovation models have been moving with increased acceleration from a focus
on the “care of disease” to the “care and cure of the person.” Stakeholders have spent nearly 20 years rallying for a reality in which patients
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article
Rethinking Shared Prosperity to Reach the Rare Disease Community
As people living in modern society, we widely believe that the market-based system of the United Sta
tes, and similar ecosystems, leads to the highest distribution of prosperity because of relatively efficient resource allocation.
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article
How Universities Drive Innovation in Aging
Aging is big business.
article
From Passengers to Co-Pilots: Patient Roles Expand
WASHINGTON – The elevated role of medical research on the U.S.
article
Medical Research Visionaries Convene in New York, Present Model Solutions to Life Sciences’ Most Pressing Challenges
WASHINGTON – More than 700 medical research innovators from 30 states and six countries will come to
gether Nov. 1-3 in New York for the 7th annual Partnering for Cures meeting.
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article
Partnering for Cures to Bring Together Hundreds of Medical Research Leaders Nov. 13-15 in New York
WASHINGTON –Leaders across medical research – from patients to policymakers, from academia to advoca
tes, from philanthropists to federal regulators and from investors to industry – will gather at the Grant Hyatt New York, Nov.
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video
December 6 at 10:30 am EST | Accelerating Access to Lifesaving Treatments and Cures: Insights from FDA's Expedited Review Programs
The Food and Drug Administration's (FDA) expedited review processes have been instrumental in maki
ng treatments available for individuals living with serious illnesses.
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video
December 6 at 10:30 am EST | Foundations as Trusted Intermediaries for Patient Data Resources
Analyzing data from and about patients is essential to advance biomedical research, but its collec
tion and dissemination require significant investment of time and resources for patient organizations that choose to be the intermediary.
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