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report
Patient-Reported Outcomes: Design with the End in Mind
“What outcomes matter to patients?”
This question is asked at nearly every meeting in biomedical R
&D and health care.
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report
Patient-Focused Drug Development Meetings: Smart Practices from Community Leaders
FasterCures, a center of the Milken Institute, designed this guide for patient advocacy organizatio
ns that are interested in hosting, or are currently planning, an externally led patient-focused drug development (PFDD)
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report
Expanding the Science of Patient Input: The Power of Language
Language matters.
report
The Impact of Insight: Patient Preferences in Novel Screening Technologies for Cancer
Patient preferences and insights are increasingly considered throughout the medical product life cy
cle in addition to clinical outcomes.
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report
Back to Basics: HIV/AIDS Advocacy as a Model for Catalyzing Change
This report highlights how people affected by HIV rallied together and created an HIV advocacy move
ment that demanded change and got results.
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report
Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakehold
ers such as product developers and regulators to define and implement the “how to” of patient
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video
Esther Krofah: Vaccines, Variants, and Lessons for the Next Pandemic
Esther Krofah, executive director of FasterCures, talks to COVID-19 Africa Watch about the public
health lessons learned so far from the COVID-19 pandemic.
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video
The Future of Health 2018
It’s been said that the future of health is “predictive, preventive, personalized, and participato
ry.” What might that future look like, and how would individuals and nations benefit? What innovations are advancing those principles around the world?
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video
Part 1: A Conversation with FDA Commissioner Stephen Hahn | Part 2: Health Innovation: Improving Patient Access and Information
October 21 at 11:45 am PDT/2:45 pm EDT
This session will open with a conversation with St
ephen Hahn, Commissioner, US Food and Drug Administration, followed by a panel discussion.
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video
System Thinking to Drive Patient Engagement: Walking the Talk
The first chief patient officer role was created in 2014, and since then, biopharmaceutical compan
ies have created similar positions, restructured teams, and convened internal meetings to advance patient engagement and patient-centered practices through
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article
From Passengers to Co-Pilots: Patient Roles Expand
WASHINGTON – The elevated role of medical research on the U.S.
article
Partnering for Cures to Bring Together Hundreds of Medical Research Leaders Nov. 13-15 in New York
WASHINGTON –Leaders across medical research – from patients to policymakers, from academia to advoca
tes, from philanthropists to federal regulators and from investors to industry – will gather at the Grant Hyatt New York, Nov.
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