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report
Beyond the Limits of Traditional Health Care: A State-Level Systematic Review of Community Health Programs in the United States
Traditional health care has not reached all pockets of the U.S. population due to income inequality
, increasing ethnic and cultural diversity, and deep fragmentation of the health care system.
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report
Cures for Life: Long-Term Follow-Up Data Collection for Cell and Gene Therapies
Through significant advancements in biomedical innovation, new promising gene and cell therapy trea
tments may be the key to unlocking the cure to debilitating genetic, oncologic, and other diseases that were once deemed incurable.
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report
IMI Socio-economic Impact Assessment Expert Group
This Innovative Medicines Initiative (IMI) report demonstrates how the first projects launched by I
MI made concrete improvements to pharmaceutical research and development (R&D); leveraging funding; creating new knowledge and tools; and making Europ
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report
Expanding the Science of Patient Input: Pain Points and Potential
Patient engagement has been called the “blockbuster drug of the 21st century.” Studies find th
at the more engaged and involved patients are with their health and health care, the better the outcomes.
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report
Patient-Focused Drug Development Meetings: Smart Practices from Community Leaders
FasterCures, a center of the Milken Institute, designed this guide for patient advocacy organizatio
ns that are interested in hosting, or are currently planning, an externally led patient-focused drug development (PFDD)
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report
Patient-Reported Outcomes: Design with the End in Mind
“What outcomes matter to patients?”
This question is asked at nearly every meeting in biomedical R
&D and health care.
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report
Are Community Health Workers Saving Lives? A Longitudinal Analysis of State-Level Variation in Community Health Workforce
U.S. health care costs are increasing rapidly while health care outcomes and access vary significan
tly across the country.
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report
Fostering Collaborative Research For Rare Genetic Disease: The Example of Niemann-Pick Type C Disease
Rare disease represents one of the most significant issues facing the medical community and health
care providers worldwide, yet the majority of these disorders never emerge from their obscurity, drawing little attention from the medical community or th
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report
IBD Plexus: Partnering to Accelerate Science
IBD Plexus is a research and information exchange platform whose goal is to accelerate research and
transform the care of patients with inflammatory bowel disease (IBD).
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report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Venture Philanthropy Legal Report: The Importance of An Interruption License
This report is one in a series on legal issues of interest to non-profit organizations engaged in o
r thinking about Venture Philanthropy work. It discusses the beginnings of Venture Philanthropy in drug development, the importance of an Interruptio
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