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report
IMI Socio-economic Impact Assessment Expert Group
This Innovative Medicines Initiative (IMI) report demonstrates how the first projects launched by I
MI made concrete improvements to pharmaceutical research and development (R&D); leveraging funding; creating new knowledge and tools; and making Europ
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report
Expanding the Science of Patient Input: Pain Points and Potential
Patient engagement has been called the “blockbuster drug of the 21st century.” Studies find th
at the more engaged and involved patients are with their health and health care, the better the outcomes.
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report
Patient-Focused Drug Development Meetings: Smart Practices from Community Leaders
FasterCures, a center of the Milken Institute, designed this guide for patient advocacy organizatio
ns that are interested in hosting, or are currently planning, an externally led patient-focused drug development (PFDD)
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report
GBM: Giving Smarter
Glioblastoma Multiforme (GBM) is an aggressive malignant brain tumor involving glial cells of the b
rain. At the time of this report, nearly 15,000 people were diagnosed with GBM each year in the United States and Europe.
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report
Patient-Reported Outcomes: Design with the End in Mind
“What outcomes matter to patients?”
This question is asked at nearly every meeting in biomedical R
&D and health care.
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report
Fostering Collaborative Research For Rare Genetic Disease: The Example of Niemann-Pick Type C Disease
Rare disease represents one of the most significant issues facing the medical community and health
care providers worldwide, yet the majority of these disorders never emerge from their obscurity, drawing little attention from the medical community or th
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IBD Plexus: Partnering to Accelerate Science
IBD Plexus is a research and information exchange platform whose goal is to accelerate research and
transform the care of patients with inflammatory bowel disease (IBD).
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report
Neurofibromatosis Preclinical Initiatives (NFPI)
The NF Preclinical Initiative (NFPI) represents one of the Children’s Tumor Foundation’s groundbrea
king models of scientific collaboration.
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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The Value of Building an Interdisciplinary Scientific Workforce — A Call to Philanthropy
The challenges that science strives to solve are increasingly complex, and making progress toward t
hem requires constant innovation and the expertise of multiple fields of study.
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report
How to Identify Health Innovation Gaps?
In partnership with the US Department of Health and Human Services (HHS) Accelerate Clinical Innova
tion Initiative, the Milken Institute has identified health innovation gaps as well as disease and condition categories with the highest economic and soci
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report
Expanding the Science of Patient Input: Building Smarter Patient Registries
Decision-makers in research, industry, policy and health-care settings are actively seeking robust
sources of patient data to inform patient-centered practices, policies and outputs.
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