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nd founding leadership to take a look back at how far medical research has advanced

am is a capacity-building program to support the personal development of an emerging cadre o, What Are the Goals of the Program? The program aims to help promising nonprofit research leaders worldwide build high-performing organizations and facilitate the growth of their peer support network.

clinical trials as well as the infrastructure to conduct trials in their conditions of interest., Tools You Can Use Related Resources

ure disease. Both cell and gene therapies seek to modify genetic material to fight disease.

simple question: "Did it work for me?" This evaluation considers many issues, including whether the best treatments are accessible and available, how the

tanding racial and ethnic disparities in healthcare and research?

sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?

nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?

tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?

vention, preparedness, and response. We appreciate the opportunity to provide our perspective in these critical discussions.

Health   Milken Institute

tional Institutes of Health 6701 Democracy Blvd Bethesda, MD 20892-4874 Dear Director Rutter,