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Research Partnership Maturity Model
FasterCures created the Research Partnership Maturity Model (RPMM) toolkit to enable patient organiz
ations that support or conduct research to 1) understand their assets and capab, Access the Model Visualization and Companion Guide
, Tools You Can Use
This collection of tools provides resources aligned to the RPMM domains, and examples that can support the growth of patient organizations hoping to build their capacity in
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article
FasterCures Quarterly Update: July 2022
It has been a busy year so far for the FasterCures team as we advance programs to lower unnecessary
barriers to progress and accelerate biomedical innovations to all patients.
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ToolKit: Foundation’s Role in Supporting Translational Science (TRAIN)
Patient-driven foundations have been playing an increasingly active and important role in supporting
translational research from preclinical development to clinical implementation., Tools You Can Use
Related Resources:
Translating Translation, Christopher P. Austin, Nature Reviews Drug Discovery, July 2018
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video
Advances in Science: Nothing About Us Without Us! Community Engagement in Research - Lessons from HIV and COVID-19
Hosted by Dr. Robert Eisinger, NIH, with guest speaker Judith Auerbach, PhD, Professor of Medicine
, University of California, San Francisco.
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video
Exploring the Power of Patient Registries to Generate Real World Data and Insights
Data from and about patients is essential to advance biomedical research and development, but its
collection and dissemination can be a significant investment of time and resources for patient organizations that choose to be the intermediary.
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article
Mapping the Patient and Caregiver Journey for Cell and Gene Therapies
Introduction
Advances in cell and gene therapies are transforming how we treat or potentially cure
disease. Cell and gene therapies aim to address the underlying cause of genetic and acquired diseases.
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article
Comment Letter: Advanced Research Projects Agency for Health (ARPA-H) Request for Information
Submitted electronically
The Honorable Diana DeGette
US House of Representatives
Washington, DC 205
15
The Honorable Fred Upton
US House of Representatives
Washington, DC 20515
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article
Center for Public Health Newsletter: Summer 2022
Executive Director’s Note,
It’s been a busy few months since our inaugural newsletter!
article
Comment Letter: Office of Management and Budget (OMB) – Practices for Advancing Equity and Support for Underserved Communities
Submitted electronically
To: The Honorable Shalanda Young, Acting Director, Office of Management an
d Budget
From: Richard Ditizio, President and Chief Operating Officer, Milken Institute
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