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The Road Ahead for Improving Access to Testing and Treatment for Rare Diseases
Genetic testing is critical to the diagnosis of many rare conditions.
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Combatting the Infodemic: Challenges of Public Communication About Science and Health
The COVID-19 pandemic has intensified the need for accurate, trusted, public information about s
cience and health.
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panel
Achieving More Person-Centered Prevention and Treatment of Chronic Diseases
Life expectancy in the US declined by 1.5 years from 2019 to 2020 in the largest 1-year drop sin
ce World War II. While COVID-19 caused 74 percent of the decline, chronic conditions such as diabetes, heart disease, and kidney disease take a heavy toll.
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Reimagining Public Health Partnerships: Lessons Learned from the Pandemic
COVID-19 catalyzed a shift in thinking about patients—not just as individuals with diverse needs
but as families, members of social networks, and communities.
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Pain Points and Potential for Cell and Gene Therapies
Cell and gene therapies have the potential to transform the lives of patients and their families
. As judged by patients' perspectives and experiences, how close are we to realizing this potential?
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Part 1: A Time=Lives Talk with Savvy Cooperative CEO Jen Horonjeff | Part 2: Where Are We and Where We Are Headed with Patient Engagement in Research?
This session will begin with Jen Horonjeff, Founder and CEO, Savvy Cooperative sharing her journ
ey as a patient and as a professional who brings patient insights to the table to improve health innovations.
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Is Digital Health a Bridge to Health Equity and Representation?
Systemic health-care inequities exposed by the COVID-19 pandemic included minority under-represe
ntation in research and disparities in care.
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Global State of Patient Engagement Networking Roundtables (Invite only)
Patient engagement in medical research continues to grow in scope and complexity in many countri
es, as demonstrated by the many international organizations advancing impactful, patient-centered biomedical R&D initiatives.
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Finding a Path to Earlier Detection and Diagnosis of Chronic Kidney Disease (Invite only)
Chronic kidney disease (CKD) is a public health threat, with increasing prevalence and poor outc
omes.
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From Venture Philanthropy to Impact Investing: Can We Grow the Pie of Investment in High-Need Research? (Invite only)
In the biomedical arena, philanthropy is being deployed with increasing sophistication to de-ris
k investment in medical product development as well as to invest directly in companies with some expectation of return.
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Health Equity in Research and Care: Where are We Now and Top Priorities for 2022 (Invite only)
Almost two years after the onset of the COVID-19 pandemic, deeply rooted systemic inequities in
health care and research continue to persist.
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Protecting the Progress: Lessons from the Pandemic for Biomedical Innovation (Invite only)
While the response to the COVID-19 pandemic has exposed many obstacles in the biomedical innovat
ion ecosystem, we have also shown ourselves capable of innovating in ways that few thought possible.
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