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podcast episode
Ep. 108: No Silos, with Google Health’s David Feinberg and FasterCures’ Esther Krofah
“What we've really tried to do is get information out there to the public, to researchers, to publ
ic health folks, so they can make better decisions about what's happening so that we can all get through this.” - David Feinberg of Google Health
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landing page
Research Partnership Maturity Model
FasterCures created the Research Partnership Maturity Model (RPMM) toolkit to enable patient organiz
ations that support or conduct research to 1) understand their assets and capab, Access the Model Visualization and Companion Guide
, Tools You Can Use
This collection of tools provides resources aligned to the RPMM domains, and examples that can support the growth of patient organizations hoping to build their capacity in
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article
Mapping the Patient and Caregiver Journey for Cell and Gene Therapies
Introduction
Advances in cell and gene therapies are transforming how we treat or potentially cure
disease. Cell and gene therapies aim to address the underlying cause of genetic and acquired diseases.
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article
Comment Letter: Advanced Research Projects Agency for Health (ARPA-H) Request for Information
Submitted electronically
The Honorable Diana DeGette
US House of Representatives
Washington, DC 205
15
The Honorable Fred Upton
US House of Representatives
Washington, DC 20515
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article
Comment Letter: Food and Drug Administration (FDA) – Medical Device User Fee Act (MDUFA)
Dear Commissioner Hahn:
article
Data Collection for Cell and Gene Therapies: Perspectives from the Front Lines
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In this Summary
Introduction
Framing the Challenge
Recommendations
Conclus
ion
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article
Comment Letter: Office of Management and Budget (OMB) – Practices for Advancing Equity and Support for Underserved Communities
Submitted electronically
To: The Honorable Shalanda Young, Acting Director, Office of Management an
d Budget
From: Richard Ditizio, President and Chief Operating Officer, Milken Institute
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