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landing page
LeadersLink Program
What is the FasterCures LeadersLink Program?
Established in 2020, the FasterCures LeadersLink Progr
am is a capacity-building program to support the personal development of an emerging cadre o, What Are the Goals of the Program?
The program aims to help promising nonprofit research leaders worldwide build high-performing organizations and facilitate the growth of their peer support network.
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landing page
Foundations’ Role in Supporting Clinical Trial Innovation Toolkit
Patient-driven foundations have been playing an increasingly active and important role in supporting
clinical trials as well as the infrastructure to conduct trials in their conditions of interest., Tools You Can Use
Related Resources
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report
Cell and Gene Therapies: Looking Ahead to 2022
Cell and gene therapies are a new category of medicines transforming how we treat and potentially c
ure disease. Both cell and gene therapies seek to modify genetic material to fight disease.
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report
Strengthening the Biomedical Innovation Ecosystem: A Scorecard for System Assessment
As patients, we often evaluate our interactions within the "system" of biomedical innovation with a
simple question: "Did it work for me?" This evaluation considers many issues, including whether the best treatments are accessible and available, how the
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report
Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakehold
ers such as product developers and regulators to define and implement the “how to” of patient
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panel
Part 1: A Conversation with FDA Commissioner Stephen Hahn | Part 2: Health Innovation: Improving Patient Access and Information
This session will open with a conversation with Stephen Hahn, Commissioner, US Food and Drug Adm
inistration, followed by a panel discussion.
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video
The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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video
Part 1: A Conversation with FDA Commissioner Stephen Hahn | Part 2: Health Innovation: Improving Patient Access and Information
October 21 at 11:45 am PDT/2:45 pm EDT
This session will open with a conversation with St
ephen Hahn, Commissioner, US Food and Drug Administration, followed by a panel discussion.
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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article
Experts Discuss Long-Term Data Collection for Cell and Gene Therapies
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FasterCures Webinar Brings Together Exp
erts to Discuss Long-Term Data Collection for Cell and Gene Therapies
In a webinar on September 23, 2020,
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