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person
Tanisha Carino
landing page
Research Partnership Maturity Model
FasterCures created the Research Partnership Maturity Model (RPMM) toolkit to enable patient organiz
ations that support or conduct research to 1) understand their assets and capab, Access the Model Visualization and Companion Guide
, Tools You Can Use
This collection of tools provides resources aligned to the RPMM domains, and examples that can support the growth of patient organizations hoping to build their capacity in
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article
FasterCures Quarterly Newsletter
In this Issue
Responding to COVID-19—A Gamechanger for Everyone»
report
Consortia-pedia Framework Report
FasterCures initiated the Consortia-pedia project to better understand the breadth and scope of app
roaches that a wide range of consortia have adopted to bring together nontraditional partners with a shared R&D goa
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report
Unlocking Intellectual Property: Principles for Responsible Negotiation
FasterCures convened a small Intellectual Property (IP) expert panel in July 2012 to develop a
set of guiding principles and points to consider that can serve as a useful tool for all parties
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report
University-Foundation Relations: From Transactional to Transformative Partnerships
In biomedical research, both nonprofit disease foundations and academic research institutions are c
ommitted to translating research into effective therapies for patients.
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report
Cornerstones of Collaboration: Foundation-Led Partnerships to Accelerate R&D
Multi-stakeholder collaboration isn’t just the participation trophy of biomedical research and deve
lopment (R&D), a nice way to make sure everyone feels included.
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article
Mapping the Patient and Caregiver Journey for Cell and Gene Therapies
Introduction
Advances in cell and gene therapies are transforming how we treat or potentially cure
disease. Cell and gene therapies aim to address the underlying cause of genetic and acquired diseases.
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article
Comment Letter: Advanced Research Projects Agency for Health (ARPA-H) Request for Information
Submitted electronically
The Honorable Diana DeGette
US House of Representatives
Washington, DC 205
15
The Honorable Fred Upton
US House of Representatives
Washington, DC 20515
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article
Closing the Gap: How an Innovative Funding Model Is Delivering Hope
It is estimated that 25,000-50,000 Americans have a debilitating skin disorder called epidermol
ysis bullosa (EB).
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article
Comment Letter: Office of Management and Budget (OMB) – Practices for Advancing Equity and Support for Underserved Communities
Submitted electronically
To: The Honorable Shalanda Young, Acting Director, Office of Management an
d Budget
From: Richard Ditizio, President and Chief Operating Officer, Milken Institute
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