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video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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video
The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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article
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
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Venture Philanthropy in Action: A Case
Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to ac
+ Read More
article
Stories from the Front Lines of Advancing Therapeutic Development for Patients: The Research Acceleration and Innovation Network Enters a New Decade
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Stories from the Front Lines of Advanci
ng Therapeutic Development for Patients: The Research Acceleration and Innovation Network Enters a New Decade
M
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