9
panel
FasterCures Private Dinner (Invite only)
article
FasterCures Quarterly Update: July 2022
It has been a busy year so far for the FasterCures team as we advance programs to lower unnecessary
barriers to progress and accelerate biomedical innovations to all patients.
+ Read More
landing page
ToolKit: Foundation’s Role in Supporting Translational Science (TRAIN)
Patient-driven foundations have been playing an increasingly active and important role in supporting
translational research from preclinical development to clinical implementation., Tools You Can Use
Related Resources:
Translating Translation, Christopher P. Austin, Nature Reviews Drug Discovery, July 2018
+ Read More
video
Advances in Science: Nothing About Us Without Us! Community Engagement in Research - Lessons from HIV and COVID-19
Hosted by Dr. Robert Eisinger, NIH, with guest speaker Judith Auerbach, PhD, Professor of Medicine
, University of California, San Francisco.
+ Read More
video
Exploring the Power of Patient Registries to Generate Real World Data and Insights
Data from and about patients is essential to advance biomedical research and development, but its
collection and dissemination can be a significant investment of time and resources for patient organizations that choose to be the intermediary.
+ Read More
article
Does it Work for Patients? A Multi-Step Approach to Defining Performance and Measuring Progress Across the Biomedical Ecosystem
Quick Links
Step One: Discover Existing Research »
Step Two: Articulate Ideals»
Step Three: Ident
ify Measures »
+ Read More
article
Center for Public Health Newsletter: Summer 2022
Executive Director’s Note,
It’s been a busy few months since our inaugural newsletter!
article
Patient Organizations as Research and Data Partners
What data assets are patient organizations creating, and how are they adding value to the work of pa
rtners trying to accelerate therapeutic development for patients?
+ Read More
article
Pediatric Biomarkers: A Slow Zone for Patients
Q. When it comes to oncology, what is one specific example of how the system is not performing well
for patients, in other words, a Slow Zone?
+ Read More