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Research Partnership Maturity Model
FasterCures created the Research Partnership Maturity Model (RPMM) toolkit to enable patient organiz
ations that support or conduct research to 1) understand their assets and capab, Access the Model Visualization and Companion Guide
, Tools You Can Use
This collection of tools provides resources aligned to the RPMM domains, and examples that can support the growth of patient organizations hoping to build their capacity in
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article
Does it Work for Patients? A Multi-Step Approach to Defining Performance and Measuring Progress Across the Biomedical Ecosystem
Quick Links
Step One: Discover Existing Research »
Step Two: Articulate Ideals»
Step Three: Ident
ify Measures »
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article
Mapping the Patient and Caregiver Journey for Cell and Gene Therapies
Introduction
Advances in cell and gene therapies are transforming how we treat or potentially cure
disease. Cell and gene therapies aim to address the underlying cause of genetic and acquired diseases.
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article
Comment Letter: Advanced Research Projects Agency for Health (ARPA-H) Request for Information
Submitted electronically
The Honorable Diana DeGette
US House of Representatives
Washington, DC 205
15
The Honorable Fred Upton
US House of Representatives
Washington, DC 20515
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article
Patient Organizations as Research and Data Partners
What data assets are patient organizations creating, and how are they adding value to the work of pa
rtners trying to accelerate therapeutic development for patients?
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article
Pediatric Biomarkers: A Slow Zone for Patients
Q. When it comes to oncology, what is one specific example of how the system is not performing well
for patients, in other words, a Slow Zone?
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article
Comment Letter: Office of Management and Budget (OMB) – Practices for Advancing Equity and Support for Underserved Communities
Submitted electronically
To: The Honorable Shalanda Young, Acting Director, Office of Management an
d Budget
From: Richard Ditizio, President and Chief Operating Officer, Milken Institute
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