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Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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Data Disrupting Health
Increasingly, organizations who are able to turn data into insights and subsequent action hold the
keys to discovering cures, supporting healthy aging, and solving society’s largest public health challenges.
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Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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Reimagining Medicare for Longer Lives
People who reach age 65 today in the U.S. can be expected to live, on average, another 20 years.
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May 2 at 11:30 am PDT | Caregiving in America: Time for Change
The COVID-19 pandemic has amplified the critical role and shortage of caregivers. An estimated 29.
2 million Americans are employed while providing on average 24 hours of care for an aging family member each week.
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Identifying Opportunities for Foundations to Support Translational Research
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center f
or Advancing Translational Sciences (NCATS), FasterCures examined approaches to accel
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Foundations Driving Therapeutic Development | Rett Syndrome
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Ad
vancing Translational Sciences (NCATS), FasterCures examined approaches to accelerate
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Foundations Driving Therapeutic Development | Fibrodysplasia Ossificans Progressiva
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advanci
ng Translational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the exp
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The Scope and Importance of Translational Science
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advancing Tr
anslational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the expertis
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