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video
Venture Philanthropy in Action: A Case Study of EB Research Partnership and ProQR
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of t
reatments and cures?
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video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
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video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
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video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
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The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
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video
Identifying Opportunities for Foundations to Support Translational Research
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center f
or Advancing Translational Sciences (NCATS), FasterCures examined approaches to accel
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video
Foundations Driving Therapeutic Development | Rett Syndrome
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Ad
vancing Translational Sciences (NCATS), FasterCures examined approaches to accelerate
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video
Foundations Driving Therapeutic Development | Fibrodysplasia Ossificans Progressiva
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advanci
ng Translational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the exp
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video
The Scope and Importance of Translational Science
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advancing Tr
anslational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the expertis
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video
Building More Diverse and Inclusive Patient Organizations and Communities
How are patient organizations taking on the challenge of diversity, equity, and inclusion within b
iomedical research to create better health outcomes for all patient populations, especially those historically excluded from research and underserved in ca
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video
Research Roadmaps: A Case Study in Charting a Path Forward to Accelerate Breakthrough Cures
Setting specific objectives and establishing strategies geared toward progressing treatments and c
ures is a critical, yet sometimes difficult, task for patient organizations.
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video
Building Impactful, Transparent, and Reciprocal Relationships with Industry Partners
How can patient organizations hoping to leverage the resources of industry researchers attract the
ir support and establish formal industry partnerships?
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