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article
Medicare Drug Price Negotiation Program comment letter
Submitted electronically
Dr. Meena Seshamani
Deputy Administrator and Director, Center for Medicare
Centers for Medicare & Medicaid Services
US Department of Health and Human Services
Baltimore, MD 21244
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article
FasterCures Quarterly Update: April 2023
In This Issue:
New FasterCures Publications
Convenings Recap
Policy Updates
ICYMI: FasterCures TRAI
N Welcomes First Rare As One Mentees
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article
Pandemic and All-Hazards Preparedness Act (PAHPA) Reauthorization – US Senate HELP Committee
Submitted electronically
article
TRAIN Newsletter — March 2023
TRAIN eNews is delivered directly to organizations that take part in The Research Acceleration and I
nnovation Network (TRAIN).
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article
Easing the Burdens of Rare Disease: Accelerating Diagnosis
One in 10 people in the United States has a rare disease. Although tremendous progress has been made
to identify and understand the 7,000 known rare diseases, more than 95 percent of rare diseases still have no FDA-approved treatment.
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video
Advances in Science: Lessons Learned from the HIV/AIDS Pandemic Applied to COVID-19
Hosted by Robert W. Eisinger, PhD, Acting Deputy Director for Program Coordination, Planning, and
Strategic Initiatives at the US National Institutes of Health (NIH), with guest speaker Michael S.
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video
Identifying Opportunities for Foundations to Support Translational Research
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center f
or Advancing Translational Sciences (NCATS), FasterCures examined approaches to accel
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video
Foundations Driving Therapeutic Development | Rett Syndrome
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Ad
vancing Translational Sciences (NCATS), FasterCures examined approaches to accelerate
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video
Foundations Driving Therapeutic Development | Fibrodysplasia Ossificans Progressiva
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advanci
ng Translational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the exp
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video
The Scope and Importance of Translational Science
In a TRAIN workshop held on May 9, 2022, in coordination with the National Center for Advancing Tr
anslational Sciences (NCATS), FasterCures examined approaches to accelerate translational research, the expertis
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video
Exploring the Power of Patient Registries to Generate Real World Data and Insights
Data from and about patients is essential to advance biomedical research and development, but its
collection and dissemination can be a significant investment of time and resources for patient organizations that choose to be the intermediary.
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video
Katrin Ericson | LeadersLink Capstone
Established in 2020, FasterCures LeadersLink Program is a capacity-building program to s
upport the personal development of an emerging cadre of leaders of nonprofit organiza
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