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simple question: "Did it work for me?" This evaluation considers many issues, including whether the best treatments are accessible and available, how the

ure disease. Both cell and gene therapies seek to modify genetic material to fight disease.

tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?

sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?

nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?

tanding racial and ethnic disparities in healthcare and research?

nnovation Network (TRAIN).

Program Updates

tration (FDA) draft guidance on Diversity Action Plans (DAP) to improve clinical trial diversity by enrolling underrepresented populations in the US.

sses are significantly more likely to become infected with antibiotic-resistant bacteria than those without chronic disease.