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13
Building Nonprofit Capacity landing page
Building Nonprofit Capacity
Since FasterCures’ inception in 2003, we have emphasized the importance of putting patients at the c
enter of the biomedical research system.
Dec 1, 2022
Strengthening the Biomedical Innovation Ecosystem: A Scorecard for System Assessment report
Strengthening the Biomedical Innovation Ecosystem: A Scorecard for System Assessment
As patients, we often evaluate our interactions within the "system" of biomedical innovation with a
simple question: "Did it work for me?" This evaluation considers many issues, including whether the best treatments are accessible and available, how the
Jan 20, 2022
Cell and Gene Therapies: Looking Ahead to 2022 report
Cell and Gene Therapies: Looking Ahead to 2022
Cell and gene therapies are a new category of medicines transforming how we treat and potentially c
ure disease. Both cell and gene therapies seek to modify genetic material to fight disease.
Jan 4, 2022
A Global Early Warning System for Pandemics: Perspectives from the Front Lines report
A Global Early Warning System for Pandemics: Perspectives from the Front Lines
The COVID-19 pandemic exposed critical gaps in the world’s ability to detect, track, and analyze pa
ndemic threats.
Dec 5, 2022
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data video
Technology Enabling Decentralized Trials, Novel Endpoints, Real World Data
New technologies and approaches to collection and use of patient data have the potential to revolu
tionize clinical research. How can patient organizations support this movement? What are potential pitfalls to watch out for?
Jan 7, 2022
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My video
Master Protocols, Adaptive Designs, and Bayesian Statistics – Oh My
Master Protocols, Adaptive Designs, and Bayesian Statistics: These innovative trial approaches are
sometimes described as being “patient-centric.” Are they? What are the challenges and opportunities for patient groups to support them?
Jan 7, 2022
Opportunities for Patient Group Engagement in Clinical Trials video
Opportunities for Patient Group Engagement in Clinical Trials
What is the range of opportunities for patient foundations to support more rapid and effective cli
nical research, through preference studies and other patient insights, trial design and networks, recruitment and retention?
Jan 7, 2022
The Drive for More Diverse and Representative Clinical Trials video
The Drive for More Diverse and Representative Clinical Trials
How can foundations help to drive diverse and representative clinical trials in the face of long s
tanding racial and ethnic disparities in healthcare and research?
Jan 7, 2022
Food and Drug Administration (FDA) - Patient Perspectives on Gene Therapy Products article
Food and Drug Administration (FDA) - Patient Perspectives on Gene Therapy Products
Submitted electronically Division of Dockets Management (HFA-305) Food and Drug Administration Dock
et No: FDA-2022-N-2394 5630 Fishers Lane Room 1061 Rockville, MD 20852
Dec 15, 2022
Milken Institute Statement on the Passage of the FY2023 Omnibus Appropriations Package article
Milken Institute Statement on the Passage of the FY2023 Omnibus Appropriations Package
The Milken Institute applauds Congress on the passage of the FY2023 Omnibus Appropriations bill.
Dec 23, 2022
TRAIN Newsletter — December 2022 article
TRAIN Newsletter — December 2022
TRAIN eNews is delivered directly to organizations that take part in The Research Acceleration and I
nnovation Network (TRAIN).
Dec 14, 2022
End of Year Legislative Package – Health Provisions article
End of Year Legislative Package – Health Provisions
Submitted electronically 
Dec 1, 2022